UTI

I awoke Wednesday morning to what I suspected was the start of a bladder infection. I called the PCP office and was told that I would need to come in and leave a urine sample to be tested. If I hadn't went for that test drive on Monday I would have been in a bit of a mess. The nurse called me back around 330pm and said it was positive for an infection and an antibiotic was called out. They were going to culture it too just to make sure that the antibiotic is the right one to treat the infection.

Driving

I finally made the decision to try to go for a drive. Dusty road with me so that if my right leg wasn't tolerating it I would just pull over and let him take over.

It was the best thing. I felt "normal" and "free". It just felt really good.

I still have a long way but driving helped to clear my mind.

Physically and Emotionally

This surgery has been a challenge with the recovery process. I thought I knew what to expect. Well I did but what I didn't expect was the challenge of the emotional roller coaster or how I physically would recover different.

I will admit that I have said some really hurtful and hateful words to my husband. I didn't even think that what I was saying to him actually was hurting him. He just would listen and not once tell to stop or that is enough. He just would listen. I was taking out my own frustrations on him. As much as I wanted to be intimate with him I just couldn't find a comfortable position. That was hard on me. I felt like such a disappointment. I also struggled with my mom. Before surgery I had it planned out to where my mom would come over to help out when Dusty returned to work. But the week he returned my mom caught the flu bug and then once better went over to help my sister. I wasn't upset because she was helping my sister. I was just upset because I try to care for my kids but it is such a challenge. Picking up the baby and carrying from point A to point B was impossible when my hands are being used to crutch around. I was told to stay toe touch weight bearing until at least 8 weeks. Dr. Millis wants my surgical hip to heal and rest. But how am I to do this when I don't have the help? But it wasn't just my mom. I have been told by some family members that "oh honey just wait until am I old." And then proceed to chuckle about it. The laughter just stabbed me. It hit me that those around me don't really understand what I live like everyday. How yes I am young but that my joints are not. The pain I live with will never be understood by anybody but myself.

Physically I have struggled. The cold weather really tenses up my muscles causing more pain then what I want to feel right now. I also have been having seat bone pain. It comes and goes. But when it is there, it is there. I can hardly move or walk. It feels like I am grinding or twisting something in there when I go to walk.

So yes my challenges from this recovery have all been directed towards Dusty. I didn't realize how much I hurt him until my major outburst on Christmas day. I shed many tears. I shared my true feelings---physically and emotionally. It is one of the hardest things to be completely open and honest but it is the best things I could have done.

Home Week 2-3

I was discharged on Saturday 11/12 as was Arianna. This began my emotional whirlwind. I got into some dumb argument with Dusty. I then became upset because what I had packed to wear home just wasn't comfortable so I changed my clothes. This put me in tears and made me angry all at the same time. Which Dusty was busy packing everything up so he didn't really want to be dealing with me. And that made me say some hurtful words. Honestly I don't remember what I said.

The flight home was a direct flight into KC. I made sure I was medicated. All was going well into mid flight when I started to hurt and the hurt started to increase. I asked Dusty if it was time for another pain med. He said no I had 2 more hours! I couldn't believe it. I said well can I take 1 since I had only 1. He said no the prescription was written to take 1 every 4 hours as needed for pain. I told Dusty I was given 2 in the hospital. He said no since the script said 1. I could write Dr. Millis when we got home and get permission first. Well all I can say is that made for a long trip back home. A long trip that didn't end so well.

So I just tried to do anything to escape the hurt and pain for the next 2 hours. Finally 2 hours was up and I immediately took another 1 but by then it was playing catchup so the 1 gave some relief but not enough to sustain me for the 2.5 hour car ride home. Once we got home, Dusty's dad and step mom arrived at our house about 10-15 minutes after we got inside. I changed into my pjs. And as I was coming down the hall I was in tears from the pain. This was NOT how I wanted people to see me. His stepmom gave me hug and they took off so we could get settled down for the night. I did email Dr. Millis. He called me back and said I could take 2 every 4 hours and if needed 2 every 3 hours.

With that I was able to finally get caught back up on the managing the hurt. But my mood was so poor and I was saying such hurtful words that Sunday morning Dusty gave me orders that I was staying in bed. Well my parents came over to see us and as my mom made her way back to our room Dusty told her sternly that I was not to be disturbed. It upset my mom. So now she is staying away from helping me out. She calls but in the late afternoon when I am typically napping. And then other family members haven't called either.

All this has caused such a spiral whirlwind downhill of emotions. Emotions that I didn't have this bad with the left hip surgery. I have just been feeling so alone and down. I am frustrated with myself because I still need to take my pain medication about every 5-5.5 hours.

My pain medication has also been making me really sick. So at the follow up with Dr. Buhr I told him and he switched me to lortab. Dr. Buhr still wants to keep both Arianna and I on 1/6th weight bearing and limited activity until our next appt.

My Surgery Day

Monday 11/7

Dusty met me back at the hotel by 515 am to help gather up my bag and walk me to the hospital. It was a chilly walk but it was once again so nice to walk.

As I walked through the entrance and up to admitting, I was calm and ready. I checked in and my ID bracelet was placed on my wrist. I then had to leave a urine sample to check for a chance of pregnancy, which I knew I wasn't! I then was called back by the nurse to answer a few questions and get my blood pressure and temperature checked.

I didn't have to wait long to be called up to the preop holding area. And the guy that called my daughter also called me. Too funny!

I didn't have the same preop holding nurse as Arianna did. I actually had the same nurse when I had my left hip done. And I had the same OR nurse Arianna did which was the same nurse for my left hip.

Anesthesia came in, Dr. Millis came in to initial both my hips. He asked if I would like a catheter that is placed directly into the hip joint for pain relief instead of the epidural. But I was worried that I would hurt so he just said we would go with the epidural. They couldn't find the consent form I had signed. Dr. Millis said "shit it was back in his office."He said to go ahead and wheel me back and he would run over to get it. My IV was placed and some medication for anxiety was given through it. And almost immediately I said "I felt funny in the head". It worked fast. A patch was placed behind my ear too so that I wouldn't wake up and get sick. So I gave Dusty a kiss and handed off my glasses.

I was wheeled back to the OR and moved over the OR table. I was told to turn to my side and the epidural was placed. Then I rolled back over and anesthesia said something about go ahead and give her more then I was out.

I awoke and didn't get sick!!! I don't remember much in the recovery room. Oxygen was blowing in my face. I did feel pain on both sides so I associated it with incision pain since I had the left hip screws removed. It was just at the top of the hip and it felt like a burning feeling. It wasn't horrible just more uncomfortable.

I was brought up to my room and said Hi to Arianna. I had the window view which was nice. But I did sleep alot so not really sure what Arianna did with PT.

Day 2 Arianna

Sunday 11/6

Dr. Millis came in and cut off the ace bandage wrap. And removed the drain. He also wiped the steri strips with betadyne before covering with gauze and then a tegaderm waterproof dressing. He even scratched her belly because it gets itchy with the ace wrap and once removed it feels good to have it scratched!

When Dusty entered the room, Arianna's face lit with joy to see her dad, her best friend as he likes to think. But even for me it was sooooo good to see him!

We all talked and Arianna told her daddy that I was a hippo. So now I have a nickname of being a hippo...hmmm kids.

I ordered Arianna her dinner and then Dusty and I left to go eat but my tummy wasn't feeling too good. After dinner we walked back to the hospital to get my bag. I said good night to Arianna and then Dusty and I walked back to the hotel. I just stayed in the hotel and Dusty stayed with Arianna. Once again I didn't sleep well. I just missed my sleeping partner. We weren't even intimate, which could have helped to relax. But honestly I wasn't nervous this time. I knew I was in such wonderful experienced hands.

I did call my mom because I was in tears not really knowing why. I was able to fall asleep but once again only until 4am.

Day 1 Arianna

Saturday 11/5 was a better day for Arianna. She was able to eat a grape popsicle. She wasn't to fond of the idea but I told her give it a try. She also sipped at apple juice and seirra mist. Her room mate also was discharged so once the room was cleaned I pulled the curtains so she could see the window.

She also was more awake. She watched some TV and talked to her brother Brady on facetime with their ipods. Of course, when you talk to one they all want to talk.

By evening I had ordered Arianna some easy tummy food to try. But not much was eaten and that was okay at least it was a start.

Her heart rate would run higher then the nurses liked so they would give her a little valium and that would help to lower it to a more likeable norm. She also was running a low grade fever but there again she was given Tylenol which would bring it down. The nurses all reassured me that all this was normal after surgery.

.View from our room (looking down) otherwise you just saw windows.
This would be the front entrance view too.

Arianna's Surgery Day

It was a chilly walk to the hospital but it was nice. Arianna had her doll. And I had my daughter to talk with. I told her it was going to be okay. And she said that she was fine but she didn't want the IV placed while awake. I told her that was a very good decision.

As we walked through the entrance I told her we would take the stairs. We didn't have to wait long for Admitting to open. Once the doors were open, we checked in and they placed her ID bracelet on. Then all we had to do was sit. We didn't sit for long and were called back by the nurse to answer just a few questions and to take her blood pressure and temperature. Then back out to the waiting room only to wait once again for such a short while before being called to be taken up to the preop holding area.

Once in the holding room, I asked Arianna if she wanted to sing Happy Birthday to her sister Paylynn. She said yes so I recorded her and Gracey singing. It was funny to see her smiling in the video and then get really serious when the nurse entered in the room. The nurse brought a pair of pants and gown for Arianna to change into and a warm blanket to cover up with. Anesthesia was first to meet with her and we told them that she would like to do the mask and then have the IV placed once asleep. They asked her what flavor and she picked root beer. They asked her if she wanted me to go back into the OR room with her. She said yes.

The OR nurse came to say HI. And then Dr. Millis came to HI. A child life specialists also came to ask if she wanted to play a game or color. She wanted to color. So she colored and watched a movie on the Ipad. Then once all was ready I was given a blue hat, blue gown, and blue mask. I put it on and then they wheeled her back and I followed. They had her move onto to the OR table. And the OR nurse began to secure her legs as anesthesia prepared to place the mask. Once they brought it close to her face her anxiety broke free. She attempted to push it away but I took her hands and told her all was going to be okay. I was here for her and she was in such wonderful hands and then she fell asleep. I then was guided out to the waiting area where I checked in. At this time I asked where I could pump since I was still breastfeeding Edgar.

Back in the room I just cried because it was so hard to watch my daughter be so brave and then watch her fears come out at the last minute. It was hard as a mother to be strong but I did it for her. I was so proud of her.

As I exited the room where I pumped, the health history nurse from the previous day was coming towards me calling my name. She had something in her hand. She said they were going to need another urine sample---I about dropped to the floor thinking "oh my goodness I was pregnant how could it be". But she said it was because mine was contaminated and I need not to worry. I explained to her why I looked to shocked and she tried hard not to laugh.

The waiting was hard on me. It was just me. I did listened to my music and crocheted. I also read my book. I was updated when the incision was made and then once the doctor was fixating the hip. Then the Dr. Millis came out with such a happy face. He was just so pleased as he spoke to me. At that point I knew this was the best thing I could do for my daughter.

I did have to wait about another 30 minutes before going back to recovery room. I definitely wasn't prepared for that. She looked so pale. The PACU nurse was wonderful at explaining everything to me. She gave report to the floor nurse and then right before they moved her, Arianna got sick so the nurse had to give her some medicine.

She was in room 1026 B. She did have a room mate her age but was going to be discharged the next day. Her room mate and mother were so polite. And then the floor was going to hold the other bed for me since I was having surgery on Monday.

Arianna kept getting sick. She also had an epidural so she could push a button to get a bolus if hurting. She seemed to need to push the button about every 2-3 hours which to me was really good considering she could have a bolus every 30 minutes. They also said she could have ice chips and clear liquids as tolerated. Since she was getting sick about every 2 hours I just gave her a few ice chips to wet her mouth. Once her night nurse came on she began the breathing exercises hourly. Arianna also only got sick just once during the night. So it was good that she wasn't getting sick anymore.

For me it was different to play the caregiver, even if it was only for 3 days.

PreOp

Thursday 11/3 was preop day for both of us. We began the day at the hospital at 9am EST in Admitting.

I checked us in. A nurse called us both back and asked all sorts of health history questions. She gave Arianna's doll an ID band and gave her a pink star balloon. After all the questions, the nurse placed a patch on Arianna's arm to numb it for some blood work later on.

Next we met with anesthesia. The lady that talked with us was a patient of Dr. Millis and had her hips done 10 years ago! I was asked about how Arianna tolerated needles and I said honestly not so good but we would see how she did with the numbing patch. But she told Arianna that if she wanted they could give her smelly flavored gas of her choice. She listed the choices---strawberry, root beer, lemon, lime, watermelon, cotton candy to name a few.

Next we met with admitting to sign a few papers and verify that spellings were correct. That didn't take long at all.

Next we were to see Dr. Millis but the nurse told us that we were to head to lab first especially since she didn't want that numbing patch to wear off. Arianna did great with the lab draw. She didn't feel a thing! I also had my lab drawn. And then we both had to leave a urine sample. I had joked with Dusty about how we better not find out we were expecting---inside joke since last time I had the right hip scheduled we found out we were expecting. I knew we weren't so I really wasn't worried.

After lab I checked us in for our appt with Dr. Millis. He wanted some xrays so we headed to Radiology. At this point Arianna was asking for lunch. I told her just a little bit longer and offered her some pretzels and chocolate. We both did a couple of xrays and then they called down Dr. Millis to come and hold our legs---kinda of reminds me of the position I am in when giving birth. But it does open the hip joint. Funny thing was that when Dr. Millis came down he told me that from the start of the day everyone was calling Arianna and I sisters! Arianna wasn't too thrilled about this but it made me feel good.

After our xrays we went to wait to meet with Dr. Millis but I got a phone call at 245pm saying they could do Arianna's MRI. So we walked back to the MRI. This time Arianna's arm was NOT numb. They used a butterfly needle but missed the vein so the lady got another person. She didn't want to restick her so she left it in place. The next person was able to get it but I thought Arianna was going to pass out. After the dye was injected we went walking for about 30 minutes. But boy did I ever hear about how it hurt. So at 330 pm Arianna was set up for the MRI. She was able to watch a movie during the MRI and I was able to sit back in the room with her. I was given a warm blanket. And thank goodness too because the room was cold. During the wait I looked at magazines but then started to focus on food. Once Arianna's MRI was done, we walked back over to meet with Dr. Millis.

We were his last visit for the day and here we were to meet with him at 11 and 1130am. Well we didn't meet him until around 545pm. But he still took the time to go over everything. He really is such a wonderful doctor. And I am so thankful he took us as his patients. He will always hold a place in my heart for what he has done.

Once we finished up with signing the consents, we were done. So I let Arianna pick what she wanted. She said McDonald's and a hot chocolate. But by the time we got to Dunkin' Donuts they were closed. And McD's were out of chocolate syrup so I felt bad that she didn't get her hot chocolate. We ate our food and I had Arianna shower and then go to bed. Her surgery was first thing at 730am, meaning we had to be at the hospital by 6am.

I didn't sleep so well for fear I would oversleep so I was up at 4am Friday. Plus I had mommy worries just knowing that I had to put my daughter through surgery. But then again I didn't want her to hurt and live like I have been living. I want to give my daughter the best life and hopefully by doing the surgery now it will save her from hurt and pain later and let her enjoy life without added worries.

2 for Boston Please

Arianna and I had a direct flight out of Kansas City for Wednesday 11/2. Hubby thought that would be the easiest for the both of us. Which he was very correct.

We left for KC after dropping off Emma and Paylynn with my mom. The 2.5 hour drive was mixed emotions for me. I had never traveled alone, just around my hometown. So flying without Dusty was whole new territory. I HAD to know what I was doing. Hence again the reason for a direct flight. Once we arrived in KC, we stopped by the American Girl Store and bought a few things for Christmas and for Arianna after surgery. A bit of a pick me up---a dolly get well kit. It included crutches and bandages. She did get a wheelchair for her doll for her birthday. All this was to help with any unnerving feelings---just knowing her doll could be like her would hopefully ease her. But honestly she was really calm about it all. Any way after shopping we got some lunch and then headed for the airport. Dusty was to walk us in but the parking lot B was all full. So I just told him to drop us off and I could figure it out.

I gave him a kiss goodbye and told him we would see him on Sunday. I found Gate 50 with no problem. I used the restroom since there was no restroom beyond the checkin point. Once we passed through security it was just waiting. And waiting is hard for me. I am a nervous flyer so the 1.5 hour wait was hard. A few times I felt like crying. I wanted Dusty there with me.

Once we were boarded, a lady helped me place my bags in the overhead compartment. Yes I am just not big enough---jut 4'9" big enough. Once seated I took my anti-anxiety medication and tolerated the flight just fine. We arrived in Boston a bit early. We were the last ones off the plane but no rush. We had our bags with us so all I had to do was find the taxi line. And that was really easy too. Just followed the signs and got in line. I told the taxi driver where we were headed and he got us to our destination. I checked in to our hotel---the Best Western Inn at Longwood. Arianna was hungry so we got us a sandwich down at the galleria. I had her shower and then we settled into our own beds. Yes Dusty booked us a two bedroom just so Arianna didn't have to share a bed with her mommy. But rest was gladly accepted since we had a busy day and had another one tomorrow.

Preparing

It came down to preparing for my RPAO and also my oldest daughter triple osteotomy for her left hip. As the final week approached I became very overwhelmed. I had no help in getting ready. I was trying to do too much. I just wanted to leave the house in good standing so that when we returned it would be manageable to stay caught up.

But despite being overwhelmed I took the time to care for me. I hadn't had a haircut in a year so I set up a cut and color. I never get my haircolored either. So this was a real treat for me. I decided to leave it up to hairstylists on the color but I wanted to stay blonde. She did really good. And I also came to find out she has hip dysplasia too but currently doesn't have insurance so she is finding comfort in a chiro. I enjoyed my time at the hair salon so it made the cautic rounding up a bit more tolerable.

All packing was accomplished but I did have to leave some instructions with hubby before we flew out on Sunday.

My Left Hip

I have been overall very satisfied with LPAO. It will never be perfect. I can say that I am able to walk without it giving out. This to me is wonderful. I no longer have horrible left hip pain, just the right now which is soon to be fixed up!
I have NOT been to physical therapy here in town. I was given a referral to Wesley Rehab. to go 2-3 times a week over 4 weeks. I really dislike excuses but once school started back in for the older kids, scheduling surgery, soccer practices, and just finding daycare for the 3 younger ones. I just decided to wait until after I have my RPAO. It will work out. Dusty will get a new round of vacation and leave so that will be HUGE help. I do on occasion do the exercises I was sent home with from my 12 week postop appt. The only one I still struggle with is the one leg drop. My left just won't go. That muscle or whatever it is just is stubborn.
Which brings me to now. The groin is giving me issues. Not all the time. But when it does, I have trouble leading with my left up stairs. It is almost like it just doesn't want to lift. Other times I can dart up no thinking involved. I do have trouble lifting the leg close to me to put on my sock. It seems to be a very weak muscle. I have great confidence that the left will carry me through the RPAO but will definitely need some PT with the right hip.
The screws most days are fine. But when they want to be noticed they do!!! Just yesterday I was wearing my jacket around my waist and the little weight around my waist was very irritating on the screws. It must be time to say goodbye to those.
Sometimes when I sit too long my left will get stiff. I am still adjusting to the new adjustment but I am very happy that it is stable and I can walk without horrible pain!

Final Blood Donation

Yea!!! I was ready for this donation.
The finger stick hurt quite a bit this time. Almost like the needle poke was just a little too deep or something. I bled really easy and my iron level was still up and good. Thank goodness too especially since this time I didn't have the week rest in between. The actual giving went really fast. I felt good but on the way home felt like I was going to pass out. Removing my jacket definitely helped.
No nap this time around to recover. I had to pick up the kids and drop my mom back off at her house. Then hurry home to have Arianna change her clothes because the junior band was invited to play with the high school band at the Friday football game. I dropped her off and stopped to get a bite to eat before returning home. All I have to say is that I think I would have been better off laying down and just taking it a little easier.

Blood Donation Time...Again

Yesterday I donated 1 unit to myself. It does make me feel a bit squeamish but it collects pretty fast. I did leave with a small headache but I think it was more related to nerves and being squeamish. This time around I did feel blah the rest of the evening. But nothing that a night sleep couldn't help with. And since I was pounds lighter then the first 2 previous donations could make a little difference.
But all went well so that is all that matters to me!

Catching up

It has been awhile since I last posted. Oops! But I will admit I have been busy. The kids started back to school in the middle of August. Emma wanted to jump start her preschool. I find it easier to just homeschool preschool. It worked out well with Hannah. We actually say " let's fill our brains" when it is time to sit down and learn. She is a fast learner!
Since starting school comes along all the extra activites---Little Flowers, Boy Scouts, Soccer practice and games. Nothing too much there ;)
I have scheduled my RPAO for Monday 11/7. But to add a bit of a twist my oldest daughter Arianna will be having her left hip corrected. As suspected she was diagnosed with hip dysplasia but instead of waiting for pain to occur, as suggested by the ortho doctor here, Dr. Millis had the idea of doing our surgeries together. So I scheduled her left hip to be done for Friday 11/4.
I have been talking to her about this since I had my first surgery. I have explained many things of what to expect. She seems to be ok with it all. Unlike me who was scared of the unknown.
I took her to Hobby Lobby and let her pick out fabric for her crutch pad covers and we will bring them with us to put on the crutches. For her birthday she got a wheelchair for her American Girl doll.
I have been busy these last couple of months organizing the house. I have donated 3 bags of clothes and 2 bags of toys! The family room downstairs is finally set up and functionable! Before it was just full of boxes and toys. I seperated out the toys and grouped together so it would make for easy cleanup. Still much to do but overall hubby should be able to keep the house up.
I was able to schedule my 2 pints of blood donation. At first they weren't sure if I could donate since I was underweight this time. I have lost some more of the baby weight but it put me under the recommended weight by just a little bit. But by the end of the day I was able to schedule both donations. The first will be Wednesday 10/12 and then the second Wednesday 10/19.
We will be ordering out plane tickets very soon. Arianna and I will be flying together on Wednesday 11/2 and Dusty will fly out on that Sunday. To make it easier on me, we will leave from Kansas City and directly fly into Boston, so no switching!

Being Half Fixed

It is really kinda odd being half fixed. I am working on my left to build its strength up. And then yet I have to deal with my right hip giving out. I do notice that since about week 9 or 10 that it just hurts all the time. I can block it out but there are times when it flares up. It really stinks.
I have been enjoying doing the PT exercises that were sent home with me. They all are going well except the exercise where I lay on my back, bring my right knee to my chest and let the left just fall down. For me the muscles are really tight so it just hangs in mid-air. I must look kinda strange or that I do it on purpose but it really can't go any further. Well, anyway, I have been noticing this pulling in my left knee when I do this stretch. I sure hope it is just because my muscle is so tight. The other day I had this urge to want to go for a jog. Funny for me because I have been or wanted to be a runner. But I just felt really good and wanted to! I also am going up and downstairs normally. I even decided to see if I could go up without using the hand rail. Success and amazing how stable my left hip felt. This is all new for me. I did notice a difference in the left and right for sure. The right felt so shaky on the inside.
I am definitely taking advantage of this no restrictions. I am starting to slowly get back into cleaning. After 3 months I will say that I do get my choice. I picked our bathroom. Not perfect but a whole lot better. It makes makes me smile to know I am back.

Week 12 Follow-Up

Tuesday July 26th was my 12 week follow-up in Boston. I was excited to see what Dr. Millis had to say. Immediately he said I could use 1 crutch and took it away. He did give it back since I got around with it faster but I was given the all clear. I did get a new set of xrays and he was very pleased with the result. He also asked how my right was holding up but I didn't get to respond because he already knew and said probably not very well and was very painful. Right on the dot. He asked if I could feel the screws and he felt for them. He said he did try to cover them up with the muscle tissue but he could still feel a couple of them. He also said they could come out any time. And I also need to have my right hip done in the fall too. Sooner rather then later. I also met with physical therapy and was given 5 new exercises. Surprisingly my right was weak too. She said that I could do outpatient PT back home but wanted to be in contact with them to explain some exercises further exercises. She said that most therapists will do exercises that are for THR (total hip replacement) patients which aren't good for a PAO patient. For example they may want to try and bring my knee to my chest which may not happen.
Since 3 of the kids were with us, and one of them being Arianna and knowing she had issues with her hips he took some xrays of her hips and did some ROM with her hips. He looked at her xrays. Didn't say anything but mmmm with a serious look. I knew that wasn't good. So as he walked back with us he said that she would need to have hips fixed too. He mentioned some other doctors but knew that we would have travel anywhere we were to take her. He said that he doesn't mind accepting her as his patient. He also said that we could schedule our surgeries for the same week to save on traveling.
As crazy it all sounds, I do like the idea and know it would and can be manageable. As Dr. Millis pointed out, I have already been through one so my left would be stronger and reliable. The anticipation for Arianna would be high but her recovery would be faster since she is younger. Her surgery does involve cutting bone and placing screws but the cuts are differently and her cartilage is all still there. Dr. Millis did sit down and talk seriously about all this. But he felt confident that this would be the way to go. Honestly I think it is the way to go myself. I don't want to see my daughter to live in pain like I have for at least the last 15 years of my life. I want the best for her.
Dusty and I will be discussing everything this week and will make a decision to what we think is best. His mom is out of annual so she won't be able to take time off to watch kids. His dad has already said he is open to helping out where he is needed.

Week 12 Vacation

This has been the best and most interesting week.
I scheduled my 12 week followup in Boston. The appointment was scheduled for Tuesday July 26th. Instead of flying we drove and took half of the crew with us. Originally the entire family was going to come with us and we would take the time to enjoy some history! But Dusty's mom took the week off and wanted to keep Hannah, Emma, and Paylynn. It was a very nice trip. I will break it up into 2 posts...1.)About vacation 2.)About the follow-up
We left Saturday afternoon after Dusty got off work and showered. Everything was packed and ready to go into the car. The 3 girls going with grandma were packed and by the door. The 3 girls left shortly before we left. We were on the road by 445pm with a 23 hour car ride ahead. We did stop for about an hour at a rest stop around 4am in Ohio. A little rest of the eyes was better then none. I did drive for a little bit. Ohio and Pennsylvania were long states to drive through.

The goal for Sunday was to make it to the Statue of Liberty and drive through New York City to see Times Square and maybe stay in a hotel and walk around. Well we did make it too the Statue of Liberty at 5pm Eastern time. It was amazing to see her! Our next stop was to head over to NYC. We took the Holland Tunnel. Our GPS said it should take 11 minutes and I said in a perfect world yes with no traffic but this is NYC with lots of traffic. And in my opinion just trying to pass through the tunnel was a mess. There was 6 lanes to start which then spread into 8 lanes to pay the toll but only 4 were cash only then after the toll it went down to 2! And yes it is bumper to bumper honking cars. Definitely not my style. Dusty fit in well though. Once we passed through the tunnel I was ready to turn back around. There are so many people. The kids couldn't believe all the people that walk and all the traffic. I couldn't either. Movies don't do the city justice. We did see Times Square but we changed our mind about walking and staying there. I said we can save that for another time. So then came the challenge of deciding where we would stay. All I know is I wanted a shower, I felt stinky. We drove through Connecticut, which was beautiful. But not their gas prices $4.23-$4.69 was the range. We didn't need gas but that would have been a lot $$$. Actually gas wasn't too bad $3.69-$3.75 in the other states. We did end up staying in Hartford, Connecticut at a Holiday Inn Express.

Monday we headed to Boston. We did a duck boat ride and shopping! The duck boat ride was a lot of fun and very educational! It was good to get to spend a day enjoying Boston. I honestly wouldn't mind taking more vacations here. Of course the shopping was fun too. Brady got to go to his Lego store and Arianna her American Girl store. Both were in awww. And for a treat the Cheesecake Factory. We stayed at the Best Western Inn at Longwood so we could just walk to the appointment the next day. We did do a lot of walking and my right did act up but my left did great.

Tuesday was appointment day. I was excited to show the kids where mommy had her surgery. Brady, especially, asked me lots of question. We ate some breakfast from the cafeteria and then proceeded to my appointment. Along the way Brady said that if he ever needed to go to a hospital he wanted to come here. Smart child I have. I won't blog much about my appointment in this post but will in the next one. It was a long day. My appointment was at 1045 am and we left CHB (Children's Hospital Boston) at 330pm. Afterwards we grabbed some lunch and headed off to Atlantic City in New Jersey. We stayed at Harrah's.

Wednesday we had plans to go to the beach but I was really sore from PT(physical therapy). So no beach. Bummer too for today was also Brady's 1oth birthday!!! I just didn't think I could crutch in the sand. Instead we went shopping at the Disney outlet store and walked around a little bit before heading off to Phillie to see a baseball game Phillies vs. Giants. We were cheering for the Giants. My husband has been growing his beard since the winter and looks like one of their pitchers, Brian Wilson. Some of even thought he was. Some wanted a picture of my lovely husband and his beard, some even wanted a picture of him. It was too funny, all the attention he received from his beard. We were even caught on tape twice! Even though, we didn't get to the beach it was a really fun day. We stayed at the Marriot in downtown Philly.

Thursday we were up early 530am so we could be on the road by 630am. It was sad how fast the time went by. But I was ready to see the 3 we left behind. When we hit Missouri, we drove so we could see the Arches. They were really big. We also decided that we just wanted to get home and to keep on going. We arrived home and pulled into our garage at 208am. My bed and sheets were greeted with much welcome.

New York

Duck boat ride (Boston)

 SFGiant FamilyPhilly vs. Giants game

Excuses

"If something is important, you will find a way. If it isn't, you will find an excuse."


How true this is. So true. I couldn't have said it better myself.
I always told my mom as she was undergoing chemo that she could live her life with chemo or she could let chemo live her life. To me she let chemo live her life. She let chemo be her excuse. Finding an excuse is much easier. We all do it. And we all have our reasons for it but it all comes down to the fact that it is still an excuse---good or bad.
Excuses can hurt as I have found out this recovery. I looked forward to having my mom around to help me. But it didn't go that way because chemo lived her life. My sister was too busy to come over too. Even my husband's step mom was too busy to come over or call. It has just been really hard. I am not the one to speak my feelings. But I feel like the trials I have been going through are not well understood by others. It isn't easy but I am trying my best to do what I can. It just really saddens me to know that those close to me haven't been around that much and it just really hurts.
I have let it get to me and depress me. I looked forward to going to my father in laws birthday. But with short notice we were unable to attend. This was a difficult time for me and missing a birthday seems like such a little thing but to me I was struggling emotionally and this really hit me hard. I understand now that surgery is also an emotional journey. Being surrounded by family really helps me but I just didn't feel like I got this.
I just really needed to get this off my chest.

Week 10

Not much news this week. I must admit that after watching the house around me come falling down into a disastrous mess, I made a personal decision to lay my crutches to the side for 2 hours a day to pick up. This really requires me to listen to my body and to really focus on not limping.
The first day I started in Emma's and Paylynn's room and started with the floor. It was a slow process because I just can't bend, squat, kneel. I have to think about what I do. And then getting back up requires thinking and using furniture as help. It is a bit of an exhausting process. And since I haven't been cleared for physical therapy yet either it really is a challenge. Also there is the guilt that I am doing something wrong because I haven't been given the "OK". But I am tired of waiting for a miracle to occur.
After that 2 hours of just picking up the floor and running the sweeper I felt pretty good until I sat down to eat some lunch and wow the soreness set in. Was it worth it, yes. I felt some peace and comfort knowing that I accomplished a chore on my own. It was a lot of work to just pick up a floor, one floor but I did it. And I haven't done any more rooms since then either.
I also did get lectured from family members about doing this but had no offers to come over to help me. I also have been told that I am nuts for driving. This is hard! Even more so now that everything I do I have to put thought into it. I start to second guess myself. I try to stay strong. But I am very vulnerable right now. My emotions are shaky. I can't just do things. For instance when I took the girls outside to play in the sprinkler and then to find out that we had a cracked water pipe and playing in the sprinkler caused a huge water mess in the basement. I couldn't just pull out the boxes that were soaked. I couldn't just get in there to start sopping up the water. I did manage to set up a couple of fans, lay towels down where I could but I just couldn't jump in and begin drying the water up, picking up the wet boxes and start drying them out. Or how about yesterday when I thought I was doing good and washing up the kids sheets and comforters only to find out that my washing machine was leaking water. There again I couldn't just pull out my washing machine. I did what I could.

12 Week Followup Scheduled

Yesterday I scheduled my 12 week post of follow up with Dr. Millis. It is Tuesday July 26th at 1045am. I do plan on asking about the right hip and scheduling that surgery.
We decided that we would drive and turn it into a family trip. Yes we will be bringing the kiddos. They are all very excited! So am I. I wasn't even sure if any of the grandparents would be able to get off so I didn't even bother to ask. Plus this was something Dusty and I have talked about since I had the surgery. We thought it would be a really great trip! As long as I have food, movies, and their ipods the car ride should go smoothly.
Now we just need to decided what we want to do. The options at this point include, Statue of Liberty, Six Flags, baseball game. We just need to decide. But I am ready for this get away!

Beware of the Gimp

With limited weight bearing on the left and horrible right hip pain, I am losing this battle currently. My right hip is causing my back to hurt. And moving around is a clown act for me. Talk about gimpiness! I would win that award for sure. I can hardly move with the right hip being so painful.
It is leaving me in a foul mood. I need a sign that says "Beware of the Gimp!"
One thing that really has been getting to me is when others take my problem and have to out do it! Now I am not by any means out for sympathy but some understanding would be nice. And no not the typical "you are young, you will heal fast." But someone who listens to what I am saying. Like one of my hip sisters put it, we aren't terminally ill but we do have a life altering hip problem. It isn't a hip replacement. This is major surgery. And bone was broken, therefore recovering does include allowing for the bone to heal.
I do not regret one bit my decision to have this surgery. Actually having my right hip acting up really awakes me to just how I was living my life before surgery and how my life would have continually gotten progressively worse.

2nd Xrays

Today I had my 2nd post-op appt and 2nd set of XRays! But still no word from Dr. Millis about increasing my weight bearing or starting physical therapy. Dr. Buhr said he would put a call in and see if we can't get some PT going. He thought the XRays looked really good. He also asked if I was still doing the toe touch weight bearing. I was honest and told him that I think it is more weight. I will get to crutching and not even think about it and when I do I it is like oops. It isn't like I am doing it on purpose. And then he asked if I have tried walking without the crutches. I told the truth but not the entire truth. I just told him that this week I have walked from the fridge to get the milk to the counter. He chuckled. But that is about the distance that I do without the crutches. Ok I have gone a bit further (kitchen to bedroom) but I am not alone. It just was easier to get some things done. Dr. Buhr did tell me that the toe touch weight bearing is so the bone doesn't shift. He does think that I could do more but wants to wait for word from Dr. Millis.
I have been good and using my crutches today because yesterday I was lectured by my loving hubby on this. He was expressing his concern about not letting my hip heal and how we didn't travel to Boston to get my hip fixed just so I could damage it more by doing what I feel even it doesn't hurt. So until I get the ok to do more, I still have to be good and follow orders! Humph.
Yesterday I also had a meltdown over mayonaisse. For some reason food seems to throw me over the edge. I just want to do more but just haven't been given the ok. I feel like I am ready for the next step but I just need the orders. I can only get so much done in a day on 2 crutches and my house is really starting show it. And I am just feeling so frustrated and a bit down.

Week 9

This week I am on my own. It stinks is all I have to say. My mood has taken a toll for the downhill. I am struggling to keep that smile.
To begin I must say that my left hip is doing very well. There have been moments when I forget I have had surgery and am ready to just go.
It is just everything else that is crumbling down around me. My back just hurts. I am using a heating pad, which it does help. But I think a deep tissue massage sounds good. Also my feet just ache too. I really good nap or a goodnight sleep would help. My right hip is acting up. I do still have this numb spot on the side of my left outer thigh. It has improved drastically improved but this week it has flared up and really getting to me. I haven't heard back from either doctor at this point.
I did get a 2nd set of xrays on Wednesday. Dr. Buhr said he would put a call into Dr. Millis and hopefully I can get some physical therapy started. He thought I should be good but he was going to leave that decision up to the Boss, Dr. Millis.

Week 8

Monday I picked up my xrays and had them overnighted. I received an email confirming they had been received. Perhaps now I will be able to do more without cheating.
I have had a bit of turn around with the groin pain. That is really good news. I now only notice the muscle pain if I do something too fast. I almost forget that I have had hip surgery sometimes and will do some movement without thinking about it.
His mom is off this week and taking 2-3 of the kids. Brady has baseball camp 9-3 this week followed by events in the evening. He has ball games on Monday, Wednesday, and Friday. A makeup game on Saturday and then Tuesday soccer tryouts and Thursday a swim test for Boy scouts.
Saturday were makeup ball games. Brady had his at 930 am and Hannah at 1030 am. Grandma Beverly took Hannah and I took Brady. Arianna was with me to help with Edgar. Dusty show able to get off work but was a little late. I am very happy to say that I managed to carry a diaper bag and chair across my back, and crutch through the lumpy uneven grass all by myself. Arianna pushed Edgar in his stroller and carried her chair across her back. Later that day I decided to babywear Edgar in my side sling. I could do it but my left isn't quite strong enough to go all day.
I also mopped the floors! It had been over a month! Gross is all I need to say. The cleaning water was no longer crystal clear. I also hung out my cloth diapers three times this week.
This week has been better.

• I was able to shower completely standing up
  

Week 7

I feel like I am going backwards on the recovery. I am sleeping terribly at night. I am so uncomfortable. My underwear just rubs on my incision. I am going to try a couple of different styles, high cut bikini and boyshorts. If I like either one I will go get me some more. Otherwise my next step is commando and I am not ready for that---watch out---eek!
This week Grumpa (Dusty's dad) has off so he will be taking 3 of the kids throughout the week. For Monday, it will be Brady, Hannah, and Emma. And then will vary each day after with the only consistency of Emma getting to go everyday. Grumpa can take her outside to play at the park or swim in the backyard. And for me I will have at least one of the older kids to help me with Edgar and be hands.
Bikini high cut didn't work---too big, boy shorts---too big. Why Target or Walmart doesn't carry a size XS I will never know but I did find low cut hipsters by Hanes that I like. So I just got me the smallest size they had. So no commando--hooray!!!
Now for the sleeping at night, still uncomfortable. I can sleep on my left side but not the entire night. I still need to wake up and physically adjust myself frequently. Laying on my right side is getting worse and worse. My right hip just says NO MORE! I do lay on my back but my tailbone gives me issues and has even before the surgery. I am not a stomach sleeper so that doesn't help. I think I just need a good night sleep or a really awesome nap. I would even settle for a relaxing massage at this point.

Week 6

Monday I celebrated because it was my last lovenox injection! Monday I also talked to another hip chick, yes I am talking about you Marcie! I have been wanting to call her and last night I just didn't want to text her so we TALKED. I did ramble on and on. Sorry about that. But it was so uplifting for me.
I also found a couple of blogs that I have been wanting to read. Now I just need to attach them to my blog.
Monday Edgar had his 6 month checkup and shots. My cousin drove me and carried Edgar for me. My aunt also came over for the day to help out around the house. Having help just to manage the kids and keep them in order is so very helpful! Because when it is just me with my crutches puts me at such a disadvantage. The kids are much quicker on their feet.
Tuesday morning I awoke to my right side in pain. I lay either on my back or right side currently. I finally decided to take the plunge and turn to my left side. Dun dun dun. Especially since I managed to pull a butt muscle during my xray last week. Shockingly it felt amazing! And the relief it brought to my entire body was enough to say "ahhhhhhh" and toot twice. 5 minutes later I also had to go #2. That was the best #2 too since surgery. Gross I know but I felt so good afterwards.
I am starting to massage my scar. I am currently using coconut oil. I might look into vitamin E or bio-oil over the weekend as this recommended by another hip chick, Marcie. But I have to wait for my shopping adventure until Saturday. Yes Target I am headed your way again.
This week has been an interesting week. I finally made it completely on my left side but it comes and goes. I am getting there and one day I won't think twice about readjusting myself while sleeping. I am getting this awful groin pain. I am assuming it is a muscle but wow does it ever let me know. I can't wait to add some new exercises. I didn't hear back from Dr. Millis or Dr. Buhr this week. So I just sent Dr. Millis an email but still now word there either. I am starting to feel really disheartened. I don't know what is wrong with me. I just feel really blah.

My Personal Goals

• Standing in the shower (only sat down to shave)
• Left side lying (comes and goes)
• Massaging scar (currently daily)

Wishing a couple of my hip chick sisters safe travels as they make their way to Boston---Jill and Ashley.

Week 5

Another week has gone by and I am still crutchin'! Some of the spark is hidden from tears but that is ok. There are going to be rough patches with emotions too. And for me, it has been this week with the emotions. Not really sure why but I did have a few break downs of just feeling "alone".
But as too any cloudy day there will also be some sun.
I did go to see Dr. Buhr here in town. I was to see him earlier but he was booked and we decided(ok Dusty talked to the nurse back when we first got home) that since I wouldn't need xrays until 4 weeks that we could just schedule an appt for then. Well he was out of town that week so we ended up scheduling for the following week. It was really no big deal. I was excited to see how things were going. My appt was for Wednesday June 1, 2011. We got their 15 minutes late. I picked Dusty up from work and he gave me instructions how to get there. Only problem he led me to where we had taken my daughter. Oops. But we were close to the highway so I turned the car around and went a little further east.
They had me stop by xray first. And there they did 3 set of xrays. By the way xray tables are really uncomfortable. We then waited for awhile before being called back. In the room, the nurse asked me questions. Then she asked if I still take my pain meds. I told her just 1/2 in the morning and occasionally a 1/2 in the evening depending on what I did during the day. She asked if I took Advil or Aleve for the pain. I told her no and didn't think I could since I was on lovenox injections. And she said no I couldn't. But I told her all the meds I was given and what I take and how often. After she was done, we did some more waiting. When Dr. Buhr entered the room he said to me "So you found your way to Boston." He then said how Dr. Millis had sent him lots of notes and detailed followup orders of what he wanted. So Dr. Buhr looked at my xrays and asked if they positioned me like this or like that. I said no, no, and yes. He said it sounded like they didn't follow orders so he would send me back and explain to the xray tech that they needed to do the set the Dr. ordered.
Dr. Buhr showed me my first set of xrays and what he thought could be new bone growth. He did me tell that since I am petite and young that he wouldn't see a problem with bone growth. He also seemed very impressed that I went through with the surgery. I am not sure if he has actually seen one or not. But he did tell me that he was to send the xrays off Dr. Millis for him to view and get back to him about what to do next. So I have to wait a bit longer.
The second set of xrays were more uncomfortable. I was tilted to my left side and in the process I pulled a butt muscle. So afterwards I had pain the butt literally.
Dusty's aunt and cousins came down for the week to help with laundry, dishes, and the kids. For me it was a blessing and HUGE help. I can do all this but for me it takes a really long time to accomplish the everyday usuals. And sadly I would get far behind.

My Personal Goals

• Did wear Edgar to carry him out to the living room but was uncomfortable
• Went into 2 stores all by myself
• Xrays
• Experimented with 1 Crutch

Week 4

This week I had a bump in the road.
It was an emotional and physically hard week. I had trouble with muscle stiffness and soreness. But the pain medication was making me sick--literally. I finally ended up cutting it in half. That helped and still was giving me relief to get through the day and try to get things done.
The kids last day of school was Thursday. They were out at 11:00 am. This was also Dusty's last day before officially returning back to work. So I called the babysitter and we picked her from school. She watched the girls and Edgar while Dusty, myself, and Brady went to see the Pirates of the Carribean movie in the Imax theater. It was really good. I did get a butt spasm. That is another thing that was happening frequently this week. I did have to take a Valium Wednesday for this but it makes me feel so druggy and sleepy. So I only take when needed. I did notice that on the bottle it said to take one 4 times daily for 21 days. Oops I wasn't doing that.
I have also had a really hard time giving my lovenox injections to myself. I have had to have Dusty give me some of them. The medication does burn. I am finally down to my last box so that is good.
Friday and Saturday I was home by myself with all the kids. It was interesting. Saturday I was a bit emotional. I was having trouble keeping up. But I did manage to get all the laundry done. I was very tired after that. I also had some sore hands and wrists too. I moved all day and didn't sit until around 2pm that day. So I was tired and did nap for a little bit.
I do find the screws bothersome too! The three little ones seem to know the spot too. Edgar does kick as he is feeding. I do have numbness which at times it itchy but when I scratch it doesn't help. It is weird. I do still like to ice the incision site and muscle. Heat does feel good too. I also have been removing some of the steri-strips. They were itchy too and then starting to hurt. So I removed one at a time and talk about relief. Not sure if I am to do this but it has felt good. I do have about 5 left on the lower part of the incision. Maybe I will leave them on until my first follow up appt on Wednesday.

My Personal Goals

• Able to get myself dressed completely. I still need the occasional help putting on my sock and shoe. (Depends on the muscle stiffness)
  
• I drove the car!
• Went to church
• Sleeping with only one pillow under my leg
• Can lay on my right side
  
• 
  

Week 3

This week I had a goal for going downstairs. But that ended up happening last week. Last week I also started to put some clothes away. Having a big family means lots of laundry. So me putting just some clothes away means that there is still alot that was left folded in baskets. I have been able to start some laundry. And this is where the kids come to very good use. They are my "go to kids". They help me carry the basket around or bring me Edgar. They are my hands!
Dusty went to work Tuesday. My sister, Jessica, came over to help. I still am taking one oxycodone in the morning to help with muscle stiffness and soreness. Well all this week I have struggled with it upsetting my tummy. And Tuesday was the day that my pink bucket was used. I tried so hard to fight the feeling off but after an hour it won the battle. :( The rest of the day I just was wiped out.

My Personal Goals

• Able to put on my underwear but easier to get help
  

Week 2

Sunday I ventured out for the first time. To target we went. I was wheeled around by Brady and Hannah. I was never wheeled into anyone. Whew. We also left the temporary handicap sticker behind so no handicap parking. But it was all good. We still ended up getting front row parking.
Monday we went to Walmart. I used a motorized for the first time ever. It took just a little bit getting used to. Paylynn and Emma loved it. They sat on my good leg but only one at a time. Paylynn sat there like a good girl. Emma on the other hand was ready to go and drive that scooter. I did feel a bit awkward.
Tuesday night Arianna had her second band concert. The fifth graders have really improved since the start of the school year.
Wednesday we went out for breakfast at Jimmy's Egg. Yum! Then we went to Micheal's craft store. I crutched around the entire store. I thought moving around more would help stimulate my bowels. I don't want to take my stool softener or biscodyl tablets anymore. The biscodyl makes my tummy upset and gives me horrible cramping. I also rode along to get the kids from school. When we got home, I crutched down to the mail box with Brady to get the mail. I must say that all the movement did work! It was an uncomfortable one but at least that was motivation for me to get my rear in gear. Well at least to start moving around more.
Saturday we celebrated Hannah's birthday with family. We cooked hamburgers, hotdogs, and brats on the grill. I wasn't much help with cleaning up the house. Thank you hubby you did wonderful at cleaning and cooking! I love you! My seat was already staked out---the recliner. I had my boppy and heating pad and read pillow all set up. I just explained to family that the recliner is the easiest chair for me to get comfortable in. And they all were very understanding.

My Personal Goals

• Venture outside!
• Go for a car ride
• Able to left my own leg up and over the tub wall
• Go downstairs
  

Week 1

Home!
My goal for the first week home was to adjust with crutches and learn how to care for myself. I had to start somewhere so why not with basic care.
I could use the bathroom without the toilet seat raiser. I could wipe myself. But the challenge was showering and getting dressed. But even more then that just how to get around the house and make myself comfortable.
I found I was worried to sleep in bed the first night home and the second night. So I just slept in the recliner and Dusty on the couch(in case I needed him). After a full night in the recliner I decided I was going to attempt the bed. Night 3 was the first attempt and was successful. I had many pillows in bed with me and I must include Dusty and Edgar in there too. The full size bed definitely was full :) But the bed felt so good. Each night I tried to sleep more on my right side. It wasn't bad sleeping. I did feel a little incision pulling but with a little adjustments it was fine.
Mornings are a different feeling. My left leg muscles are stiff and sore upon waking. Still bearable compared to the pain presurgery! But I do have trouble moving the leg without some help.
I do need help putting on my pants. I can get my unoperated leg in but need help with operated leg. I need help getting lifting my operated leg over the tub wall but it is getting easier. The first shower at home hurt a little bit. But it felt so good to shower. Unfortunately I am not getting a shower everyday. That is ok because things are little bit crazy around the house.
By the end of Week 1 I could cross my goals off.

My Personal Goals

• Able to get myself into bed just need help placing pillows but can adjust myself
• Able to shave my legs without help
• Can use the bathroom without help
• Very good at clearing a path using the crutches
• Can situate myself in the recliner but easier to ask for help
  

Day 6

I had met the goal of having a bowel movement, pain control, but still needed PT.

PT came that morning. She wheeled me to the room and had me do the stairs the twice! And then walk back to my room! I felt good but was tired from last night. But I decided that I wanted to sit in the wheelchair, where I fell alseep for about two hours.
Dr. Millis came in and told me that since I have met all the requirements and I was doing good that he didn't think insurance would cover another night in the hospital. It was fine by both Dusty and I. Dusty was already looking at flights home. He did find some that flew into Kansas City. Dusty's dad was agreeable to pick us up. So we booked our flight for almost home :)
Dusty filled my prescriptions at the hospital pharmacy. And the nurse gave me my discharge papers. They called a cab for us that was to be there in 30-40 minutes but they actually showed up while we were still upstairs being discharged. No big deal we just gave them a call back and they showed up again.
Getting into the mini van at first was a challenge but did manage to get into the front which was easier. At the airport, I was pushed around in a wheelchair. We did get to skip to the front of the security checkpoint. They were all really nice and were trying to help get me through the metal detector so I wouldn't have to be patted down. But I just couldn't do it and I had already planned to be patted down. It just seemed easier. It wasn't bad. I just told them where my incision was. We were seated first and then we would wait until everyone else got off. We landed in KC at 1045pm. His dad, Papa Lou, and Edgar showed up about 15 minutes later. It was easier to get into the van but it was also pulled right up to the curb so it wasn't as high to step up.
The 3 hours it took to get home wasn't bad either. I did fall asleep twice though. Once home I slept on the recliner and Dusty on the couch since he had to get up in 3 hours anyway to take the older three to school. It was good to be home.

Day 5

Saturday!

I did stairs with PT today. I was going to go for round two but was just so exhausted and not feeling very good. She said we would go again tomorrow. I was fine by that.
Nurse Kathy kept giving me poop pills to take. It started out with the usual colace and miralax. But that wasn't having any results so she gave me two biscodyl pills to take along with two rounds of milk of mag (YUCK!). She was giving me until 2pm to have a bowel movement. And I was given orders by her to walk in my room and the halls to hopefully stimulate the bowels. So I did.
At around 2pm no result but Dr. Millis had come to my rescue and wheeled me down to get an xray. For some reason when it came to getting on the xray table I had pain when moving my leg but it was in my knee, not hip. Dr. Millis told me to relax and that I would feel better so I did feeling very hesitant about it but he was right. The xray was taken and I got back in the wheel chair and had to face what was coming next.
Suppository time! And Nurse Kathy was there ready to go. Once placed she told me to wait at least 10 minutes. As it got closer to 10 minutes I was getting a little worried I wasn't feeling any urge to go. I really didn't want an enema. So at 10 minutes I got out of bed and headed for the bathroom maybe that would be enough. And it was!
But that night I was up three times. It kind of had a domino effect and got the bowels going. And when I had to go I had to go. And yes even though I was slow at getting around, I made it every time. So I must say I definitely met the having a bowel movement successfully!

Day 4

Friday!
Busy Busy day. But that is a good thing. I still do get a wave of nausea. And I was given zofran thru the IV one time. I also have a patch behind my ear that helps with that too. I am still not very hungry. So not like me one bit because I love food. But I think it is from having surgery and the pain medications that I am given. My favorite combonation of drugs are 2 Tylenol and 1 Oxycodone. Not too much and not too little but just right.


I did get out of bed and took another shower. That just feels so good to wash up and shave under my arms and put deodorant and brush my teeth. It is so refreshing. I then sat in a recliner chair until PT came and took me down to practice walking the parrallel bars. That was different because I tell my leg to move and it won't so PT had to encourgae it along. But as I worked my back I was able to use my toes and creep my foot very slowly ahead of me. It was a very slow process but I made it back to my wheel chair and sat down. PT returned me to my room. Again I just wanted to sit in the chair. It just felt nice to be out of the bed that I had been in since surgery.



Chair



I did order chicken and noodle soup for lunch and ate most of it. But the waves of nausea interfere with really wanting to eat a whole lot right now. I was told by Kathy, my nurse, that I need to drink, drink, drink otherwise she would hook me back up to the IV since I am nursing a baby.



I did a get a new nurse later in the afternoon, Chris. He is absolutely amazing!!! All my nurses have been great. I was to do PT again at 345pm so he offered some pain meds to take. Which I decided would probably be a good idea so I took 1 oxycodone and 2 Tylenol. PT came and wheeled me back to there room. This time instead of using the bars I used crutches. It was a little more challening at first because I was still doing this toe crawling thing to move my foot forward. But when I turned around to come all of a sudden I was able to slide the foot. YEA! I did sit in the wheel chair for a little bit to get a little rest. But I crutched back to my room and they followed me with the wheelchair in case I did get tired. But I made it. I again chose to sit back in the chair. Thank goodness I did because it made it easier to go to the bathroom, which is something I have been doing frequently. So I feel that I well hydrated. Dusty does help me to the bathroom and helps me get back.



Crutching



I do notice that my left feels stable. It doesn't feel like it is living on the edge anymore.

Dr. Millis came in and said that I am doing such a wonderful job that I might get dismissed tomorrow. I still need to poop, which he said they can give me a supportory if I don't go and I need to pass PT stair climbing.

I am just blessed to be taken care of well. Everyone has been just so wonderful.



Day 3

Thursday
At 6am the night nurse came in to turn off the epidural and start me on pain medications. I am given oxycontin twice a day. And then for any breakthrough pain I can get ocycodone.
I did have my O2 monitor removed, along with the heart monitor tabs. A few hours later pain control team came to remove the epidural. That felt so good because my back was itchy and sweaty. I also had my foley catheter removed! I wasn't so sure how the first time would be go on my own since I had the foley in place surgery day. It went great because an hour later, I had to use a bedpan and ahhhh that felt so good. It was easy. I also had my IV fluids stopped since I was able to go on my own.

I did get to meet two hip chicks today. The first was Jill. She has had both her hips done. She is currently 6 weeks out and she managed to get out of her wheelchair and walk over to my bed to get a picture. She does have should surgery. So if you are reading this please say prayers that she does really good.



Jill and Me



 I also met Arpine and she brough me a good bag. It was so wonderful to see these ladies that I have talked to through yahoo hipwomen and hipchicks.



Arpine and Me

PT did get me out of bed. But right before they came i felt so sick to my stomach. I did get some IV zofran and a new patch to go behind my ear. I was disappointed because I was looking forward to sitting in a chair. I did get a shower though. That felt so good to wash my hair and shave my underarms.

Anesthesia did tell me that I may get a bit puffy from the fluids they pump into you. It really seemed to go to my feet. But boy i have had to use the bedpan quite frequently. I like for Dusty to help place it under me. When I have to go I have to go. Dusty has been a great sport about it. Even when I ask for the bedpan with in 5 minutes. It would be easier if I could just pop right out of bed. I will there in a little while.

Just wheel me over the toilet for it does have a toilet seat opening. 

Day 2

Wednesday.

I did get my second unit of blood last night. That is a great perk me up. I battled the itchies all day long and night. So I was given some nubain for that. The itchies I think must be from the epidural. The night nurse told me that she would bring it in every 4 hours so I could sleep better and to keep comfortable. That was a very good idea because boy was I itchy.

PT came in and worked on some basic leg exercises. The same exercises as before. I do have waves of being nauseated.

Not much else was done except laying around.

Day 1

Not too much. I just really rested and battled the itchies. That is absolutely no fun. But I was nubain to help which it did help!
I ate two things of jello, orange and strawberry. I was given a sponge bath. That felt so nice. My sheets were also changed. Ahhh clean sheets felt really good too especially since I have been sweaty.
Physical therapy came to do some basic exercises I can do while laying in bed. Point my toes to and from me. Tighten my upper leg muscles and then tighten my butt muscles.

My added form of PT---helps so I can pull myself up.

I did start to feel uncomfortable. I couldn't tell what was causing it since I ace bandaged up. I though it could be the incision it self. My night nurse did give me two Tylenol to take which helped out a lot. I was given Valium to help relax the muscles. I also like the ice pack on the site and my back.
I am also to use this breathing apperatis. The goal is to get all three blus balls to raise. At first I could only do the light blue one. But by late evening I was able to lift the medium blue slightly.
Dr. Millis stopped by in the morning and then again in the evening. He told me that he would call my mom back home and give her an update. He said told her that I was doing great and that i would most likely be getting out of bed by Thursday. That just made my mom's day. She even mentioned it on facebook and so did I. Dad was impressed too when mom told him. Dr. Millis is very caring and wants what is best for his patients.
So far I have been pleased with all the staff.
Dusty even went to see a Red Sox baseball game. I just told him to make sure i was comfortable before he left. And when he got back he rubbed some rubbing alcohol on my back to help with the sweaty itchiness.

Red Sox game

Surgery Day 0

On Sunday night I did manage tp get some sleep. But I had two dreams. The first was that the surgery was cancelled and they would call me when there was an opening. Sad no one called me back. The second dream was that the little ones kept getting into my suitcase and taking out my nursing cover up.

We did get up at 5 am. I showered and just wore what I had on the previous day. No point in dirtying clothes that I would just be out of in a couple of hours. I did dry my hair. Packed up our bags and had them stowed and the Bestrn Western Inn at Longwood, where he stayed.

We then began the short walk to Children's Hospital Boston.

Once there we checked in at the Preop clinic. A nurse called me back, took a set of vitals, and had me leave a urine sample to make sure of no posibilitu of pregnance. Standard for female patients over 12 years old. I then was given a hospital bracelet.

A volunteer took three of us at a time to the preop holding area. There I as given a gown to change into. I did get a warm blanket. Anesthesia came to discuss about the epidural and being inder general. He then started my first IV so they could give me some medication to relax. But only after a met with the Dr. Mills and his fellow. He initialed my leg with EN.

I then was wheeled back and an epidural was put into place. Once it was placed they laid me down and put a mask over and then I out.Then did start two more IV's for blood. They did give me back one unit back in the OR-

When I was back in recovery, I did get sick so they gave me lots of anti-emetics. After that they put a patch behind my ear. That worked the best. Then I was brought to my room. I did need zofran one more time. And a valium to help with the muscle pain.

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